Patient Safety Advocates
"
We are all here to be of service to one another...to grace one another's lives
with offerings of our skills and talents, our time and energy, our resources,
and our love..." ~ Caroline Joy Adams
Advocates
for Delivery of Quality Patient Care
"Devoted to Consumer Education"
Roberta Mikles BA RN, Director
www.advocates4patientcare.bravehost.com
Americans Mad and Angry
Americans Mad and Angry! is a non-profit, non-partisan
healthcare consumer activist organization. We provide timely and meaningful
fact-based information and resources to help people become more knowledgeable
about medical errors, hospital acquired infections, other preventable adverse
events and the lack of disclosure and accountability in our healthcare system.
Email:
info@americansmadandangry.org
www.americansmadandangry.org
American Association for Justice
"Keep
our Families Safe: Consumer News for Families" www.atla.org/public/columns/mederr.htm
Activist Center
www.atla.org/ActivistCenter/ActivistCenter.aspx
The Leonard
M. Ring Law Center
1050 31st Street, NW
Washington, DC. 20007
800-424-2725
www.justice.org
Citizens for Medical Safety
Activists for medical
malpractice victims throughout the country who believe that change in healthcare
can only be achieved by working through the political process.
www.citizens-for-medical-safety.com
Committee to Reduce Infection Deaths
A
non-profit organization devoted solely to reducing hospital infection rates.
1111 Park Avenue
Suite 13-C
New York, NY. 10128
www.hospitalinfection.org
Connecticut Center for Patient Safety
PO Box 231335
Hartford, CT. 06123-1335
800-251-7444
www.ctcps.org
Consumers Advancing Patient Safety
(CAPS) is a consumer-led nonprofit organization formed to be
a collective voice for individuals, families and healers who wish to prevent
harm in healthcare encounters through partnership and collaboration.
CAPS
envisions creating global healthcare systems that are safe, compassionate &
just.
One W. Superior Street, Suite 2410
Chicago, IL 60610
Phone: 312-274-1301
Fax: 312-274-9696
Email: info@patientsafety.org
"Endemic" END Egregious Medicine and Injustice in Health Care
Consumer group for the victims of medical
error. Includes patient safety advocates and anyone interested in healthcare
reform.
To join the list serv:
endemic-subscribe@yahoogroups.com
Families Advocating Injury
Reduction (F.A.I.R.)
Organization dedicated to protecting the rights of consumers and workers;
who seek to organize and empower injury victims and their families through advocacy
and public policy. In addition to opposing limitations on the legal rights
of victims, FAIR is committed to developing and building public support for
policies that promote: safer consumer products, safety in the workplace, and
better quality health care.
Chicago Area (708) 354-8741
Downstate IL. (217) 352-6533
www.illinoisfair.org
Health Care for All
Health Care Quality Stories of Harm (Videos)
These are members of the Consumer Health Quality Council. Their stories show
how systemic problems in the quality of health care can have a permanent impact
on lives. The council works to ensure that health care consumers receive high
quality, safe, and accessible care. We are posting these stories to share their
experiences and to enact change in the health system for the benefit of future
consumers.
www.hcfama.org/quality/stories
Kentucky Watch is a non partisan, non profit, consumer advocacy
organization that promotes the education of citizens in Kentucky on the
legislative process and regulatory decision making. We work towards focusing
greater citizen, government, and media attention on healthcare and insurance
industries by pushing for stronger regulation, greater accountability and more
open access to information about how these industries discipline wrong doers,
set rates, correct errors and establish standards. Their vision is for consumer
driven systems that openly disclose healthcare outcomes, insurance costs/rates
and the establishment of standards.
112 Lakeview Court
Georgetown, KY 40324
(502) 370-6657
Email:
director@kywatch.org
www.kywatch.org
LeapforPatientSafety.Org
"We are a non-profit organization whose goal is to promote patient
safety awareness and prevent medical errors"
http://leapforpatientsafety.org/about.html, email: GCACNY@aol.com
MRSA Survivors Network
Jeanine Thomas, Founder
630 654-4588
www.mrsa-survivors.org
Maureen's Mission
Maureen's Mission began with a promise Bill Thiel made to his wife,
Maureen, before she died. Maureen asked him to make sure he told her story so
that other women wouldn’t have to face the same fate as her. She didn’t want her
life - or her death - to be in vain. She did not another woman to have to suffer
the pain she dealt with due to her misdiagnosis of breast cancer.
Rembrandt's PR and Writing Blog for Startup Success – PR Success of
Maureens Mission
www.shopfloorblog.com/2008/03/rembrandts-pr-2.html
www.MaureensMission.org
554 Oberdorfer Road,
West Pittston, PA. 18643,
(570) 388-1058, Bill Theil, Executive Director, Email:
Wthiel1106@aol.com
Med-Malpractice
The Speken family shares their
story of loss from both the consumer and provider perspectives
www.med-malpractice.com
www.med-malpractice.com/preface.htm
Medical Error Survivor Support
E-mail: messup@optusnet.com.au
http://groups.msn.com/messup
Medically
Induced Trauma Support Services (MITSS), Inc.
Supports, educates,
trains, and offers assistance to individuals affected by medically induced
trauma
PO Box 343
Mansfield, MA 02048
Tel: 1-508-337-2900
Toll Free: (888) 36-MITSS
www.mitss.org
Medically
Injured Survivors Support, Education, & Discussion (M.I.S.S.E.D.)
www.misdiagnosed.com
The National Institute for Patient Rights (NIPR)
Nonpartisan, free-standing, community interest corporation with a social mission
dedicated to helping patients and their advocates protect and promote their
rights and address violations of patient rights.
Patient survey response forms: www.empowerpatients.com/index_files/Page677.htm.
6635 E 18th Ave.
Denver, CO. 80220
Phone: (303) 321-8600
www.empowerpatients.com Email:
empowerpatients@gmail.com
Oklahoma Center for Consumer and Patient Safety
PO Box 4481
Tulsa, OK 74159
office: 800-994-6025
facsimile 918-512-4208
www.okccps.org
Patients In ARMS
(Advocates Reforming Medical Standards)
7480 Gravois Road
Dittmer, Missouri 63023
(636) 274-ARMS
E-mail: Carmilarms@aol.com
http://members.aol.com/carmilarms/PatientsInArms.htm
PULSEAmerica
P.U.L.S.E. Inc.
is a nonprofit organization for the survivors and victims of medical errors,
adverse events and substandard health care. Members and participants are
encouraged to use their experience to educate and advocate for a safer
healthcare system
PO Box 353, Wantagh,
NY. 11793 (516) 579-4711
www.pulseamerica.org
Chat Room http://hometown.aol.com/pulse516/Chatroom.html
The Quaid Foundation
11620 Wilshire Blvd., Suite 460
Los Angeles, CA 90025
(310) 914-4040
www.thequaidfoundation.org/index.php?option=com_frontpage&Itemid=1
Our
mission is to raise the standard of patient medical
care by:
- Breaking the “conspiracy of
silence” by raising public awareness of our
broken medical system, so that the medical
industry is compelled to become more publically
accountable to society at large. Our model will
be similar to that of the airline industry.
- Eliminating HUMAN ERROR
Our goal is to serve as
watchdog advocate and facilitator in the
development and implementation of systems,
technology, and safeguards that maximize patient
safely while minimizing the impact of HUMAN
ERROR in patient medical treatment. We also
strive to make the public aware of which medical
facilities are vigilant about operating at the
highest standard, so that patients may make a
more informed decision as to where to receive
their medical care.
- Patient’s Rights
Patients have the right to
know any information that could have an impact
on their health and well-being so that they may
access their own risks and make a more informed
decision in regards to their choice of
hospitals, doctors, and other medical
professionals by:
- Timely access to their
own medical records, with the assurance that
these records are in full, accurately kept
as per protocol, unabridged, or altered in
any way.
- Access to the “track
records”, if you will, of the health care
professionals taking care of them pertaining
to any past cases of malpractice or
reprimands from any state health board.
- Access to an evenly
balanced justice system when they or one of
their loved ones is the victim of egregious
medical error.
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Talk About
Medical Experiences (T.A.M.E.)
Nonprofit organization that advocates and publicly
targets medical errors, discrimination, and abuse in the medical care
delivery system, to the extent that recipients and former recipients of medical
care may need assistance to support and protect their rights
Pres. & CEO, Dr.
J. Talbert
PO Box 6850
Washington, DC. 20020
(202) 678-6038
www.tameinc.org
www.108days.com
