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Health Care Advocates

 

Voice4Patients.Com
PO Box 273
Warren, ME.  04864
www.voice4patients.com 
voice4patients@aol.com

National Support Services 
PULSEAmerica.Org
(719) 564-0280
 

 

NEW:  Fatal Care: Survive in the U.S. Health System
Fatal Care takes readers behind the statistics and into the lives of those who have experienced, first hand, the impact of what these numbers represent. Their individual stories embody all of the drama and tension found in popular medical series television productions. The portraits of these flesh-and-blood characters and their families will resonate with readers and draw them into the events and their lives. Readers will be reminded of people in their own lives who have had similar experiences.Fatal Care is unique and unlike other healthcare-related books, blending true, real-life dramas that illustrate gaps in the healthcare system with factual information and analysis for healthcare consumers and professionals. Every case in this book brings to life the chain of events that led to mishaps, and proposes solutions to prevent future mistakes and protect future patients.
IGI Publishing, www.fatalcare.com, www.igipublishing.com

A Promise Fulfilled: One Couple's Journey Through Misdiagnosis, Breast Cancer and Advocacy
This story will save your life.  You will not hear this story anywhere else, but it is a story that every woman and every woman's daughter needs to hear.  When a doctor tells you that you have a breast lump, but it's o.k., don't worry, that's when this story should mean the most to you.  It is my wife, Maureen's story, and I promised her that I would tell it as many times as it took to make sure that her story never happens again. ~ William Theil.  by William C Thiel As Told to Maureen Bachanan Jones,  ISBN 0-595-40747-1 www.iuniverse.com/bookstore/book_detail.asp?isbn=0-595-40747-1

A Sea of Broken Hearts: Patient Rights in a Dangerous, Profit-Driven Health Care System
John T. James, Ph.D, www.authorhouse.com/bookStore/ItemDetail.aspx?bookid=46331
ISBN 9781434321367 - FMI: John James, PO Box 590181, Houston, TX, 77289-0181

Choosing a Nursing Home:  A Step-by-Step Guide  by Rick Wilfong, ZWI and Associates, 2000

Consumer's Legal Guide to Today's Healthcare "Your Medical Rights & How to Assert them" Stephen L. Isaacs, J.D. & Ava C. Swartz, M.P.H., Houghton Miffin Co. 1992 Boston-NY-London

"The Day the Presses Stopped by David Rudenstine"
"A rich, textured, balanced, and clear-headed recounting of one of the most important First Amendment cases of our time" - Anthony Marro, Columbia Journalism Review, University of California Press, Berkeley - Los Angeles - London, 1996  

The Empowered Patient by Dr. Julia  A. Hallisy
Helping empowered patients claim their right to safe, effective healthcare
www.TheEmpoweredPatient.Com

"The Intelligent Patient's Guide to the Doctor-Patient Relationship: Learning How to Talk So Your Doctor Will Listen"  by Barbara Korsch & Caroline Harding, 1998 

Lerner's Consumer Guide to Health Care
How to Get the Best Health Care for Less
P.O. Box 20697, Seattle, WA 98102   (310) 659-0466
www.lernersurvey.com/lh_contents.html

www.108days.com

Patient Power
by
Richard N. Podell, William Proctor, Denton A. Cooley Fireside; ISBN: 068481515X; (July 1996)

PORT IN THE STORM: How to Make a Medical Decision and Live to Tell About It
Dr. Cole Giller, a board-certified neurosurgeon and Associate Professor at Southwestern Medical School, illustrates that medical decision making is a human process requiring more than technical knowledge alone. PORT IN THE STORM is the first book to guide us, the patient, through the emotional and mental landscape of the toughest decision of our lives, our medical decision.  In a unique six-step plan, Dr. Giller emphasizes the human aspects of medical decision making that are so important, yet so often neglected. Using lucid explanations and real-life examples, Dr. Giller explains the need to not only quickly gather, understand and evaluate a bewildering mass of medical information, but also blend it with our personal preferences and beliefs that lead to decisions that are comfortable and meaningful to us.  by Dr. Giller, LifeLine Press; ISBN: 0895261324 www.regnery.com/lifeline/lifeline.html

The Patient’s Guide to Preventing Medical Errors - Praeger Publishing Group, Westport CT and London.  Please contact Ms. Berntsen at preventingmedicalerrors@cox.net or 619 302-9764.

Things you should know before entering the hospital www.patientsafetyvideo.com

Wall of Silence: The Untold Story of the Medical Mistakes That Are Killing Millions of Americans
by Rosemary Gibson, Lifeline Press; (May 2003), ISBN: 089526112X,
Praise for "Wall of Silence" www.wallofsilence.net/praise.htm

When Your Doctor Doesn't Know Best : Medical Mistakes That Even the Best Doctors Make--And How to Protect Yourself by Richard N. Podell, William Proctor, Simon & Schuster; ISBN: 0671871129; (January 1995)

"Working with your Doctor : Getting the Healthcare You Deserve" -
O’Reilly & Associates; Nancy Keene, 1998 

Your Medical Rights "How to Become an Empowered Consumer"
Charles B. Inlander & Eugene I. Pavalon, People's Medical Society, 1994 (out of print, but used copies available at Amazon.Com)

 

For the Professional:

Accountability:  Patient Safety and Policy Reform, Virginia A. Sharpe, Editor - ISBN 1-58901-023-x $39.96
Georgetown University Press, PO Box 50370, Baltimore, MD.  21211-4370 (800)537-5487 www.press.georgetown.edu

The Basics of FMEA (Failure Mode and Effect Analysis) by McDermott, R; Mikulak, R; Beauregard, M., Productivity, Inc. 1-800-394-6868

Demanding Medical Excellence: Doctors and Accountability in the Information Age by Michael Millenson, University of Chicago Press ISBN: 0-226-0-226-52587-2
An interview with Michael L. Millenson, author of Demanding Medical Excellence: Doctors and Accountability in the Information Age
www.press.uchicago.edu/Misc/Chicago/525872.html 

Doing What Counts for Patient Safety : Federal Actions to Reduce Medical Errors and Their Impact by Donna Shalala (Editor), Alexis Herman (Editor) DIANE Publishing Co; ISBN: 0756715504; (August 2000)

Error Reduction in Health Care: A Systems Approach to Improving Patient Safety by Patrice L. Spath,  2000 John Wiley and Sons Ltd  ISBN: 155648271X

Heart Failure
The Diary of a Third Year Medical Student
" To all the students who went to bed crying or woke up screaming. To all those who needed to leave their hearts at the door. " Publisher: Michael Greger, MD; ISBN: 0967828805; (April 1, 2000) 
E-mail:  webmaster@upalumni.org, http://upalumni.org/medschool

Medical Harm : Historical, Conceptual, and Ethical Dimensions of Iatrogenic Illness  
by Virginia A. Sharpe, Alan I. Faden
Cambridge University Press; ISBN: 0521634903; (February 13, 1998)

National Patient Safety Foundation
Patient Safety Publications, Conference Tapes and Syllabus Order Form
www.npsf.org/forms/orderform.html

To Err Is Human: Building a Safer Health System
by Linda T. Kohn (Editor), Janet Corrigan (Editor), Donaldson, William C. Richardson (Preface), Molla S. Donaldson (Editor) National Academy Press; ISBN: 0309068371; 1st edition (April 15, 2000)

 

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