Children's Health Care Organizations
Support, Information and Resources
The Alexander Trust
The Trust encourages and promotes the freedom of information between families who wish to learn more about their own special needs children. Web site includes information on the Dolphin Assisted Therapy program.
14 Ashford Rd., Moorfields, Bath, Somerset BA2 2DH
www.thealexandertrust.com
Allergy & Asthmatics Network: Mothers of Asthmatics, Inc.
2751 Prosperity Ave., Suite 150
Fairfax, VA. 22031
800-878-4403
www.aanma.org
Brachial Plexus Palsy Foundation
Non-profit organization dedicated to raising awareness of brachial plexus palsy, a birth injuring that affects children, and providing resources for affected families
210 Spring Haven Circle
Royersford, PA. 19468
E-mail: brachial@aol.com
http://membrane.com/bpp
Camp Firefly
A weekend camp for children Ages 5-13 with cancer or chronic blood disorders and their siblings. The camp's medical staff includes physicians, registered nurses and social workers.
Mission St. Joseph's Health System
509 Biltmore Avenue
Asheville, NC. 28801
(828) 213-1111
Children's Heart Organization
Dedicated to improving the lives of children with congenital heart defects and disease
Box 52088, Garneau Postal Outlet, Edmonton, Alberta T6G 2T5
(780) 454-7665
E-mail: ch@childrensheart.org
www.childrensheart.org
Children's Liver Disease Foundation
36 Great Charles Street
Birmingham, B3 3JY
United Kingdom
Telephone: 0121 212 3839
E-mail: cldf@childliverdisease.org
www.childliverdisease.org
Children's Mitochondrial Disease Network
Mayfield House, 30 Heber Walk, Chester Way, Northwich, CW9 5JB, England UK
www.emdn-mitonet.co.uk
Cleft Palate Foundation (CPF)
Includes the CLEFTLINE which is a toll free service providing information and referrals to parents of newborns with clefts and other craniofacial anomalies and to adults with such anomalies
104 S. Estes Drive Ste. 204
Chapel Hill, NC. 27514
(919) 933-9044 or 1-800-242-5338
E-mail: cleftline@aol.com
www.cleft.com
Congenital Heart Information Network (C.H.I.N.)
International organization that provides reliable information, support services and resources to families of children with congenital heart defects and acquired heart disease, adults with congenital heart defects, and the professionals who work with them
1561 Clark Drive
Yardley, PA. 19067
(215) 493-3068
www.tchin.org
Joseph Corpina Foundation
Dedicated to the enhancement of health and quality of life for children who have suffered traumatic brain injury
PO Box 178-H
Scarsdale, NY. 10583
Email: info@JosephFoundation.org
www.josephfoundation.org
Corporate Angel Network
Non-profit organization providing free plane transportation for cancer patients to and from recognized cancer hospitals by using empty seats aboard corporate aircraft operating on business flights
www.corpangelnetwork.org
Family Voices National Office
A network of families from throughout the United States who have children with special health needs; as well as caregivers, professionals, and friends whose lives have been touched by these children and their families.
3411 Candelaria NE, Suite M
Albuquerque, NM. 87107
1-888-835-5669
E-mail: kidshealth@familyvoices.org
www.familyvoices.org
Genesis Fund
Provides funding for diagnosis and treatment of children born with birth defects, mental retardation and genetic disorders
(781) 575-1177
www.thegenesisfund.org
Give Kids The World
Non-profit organization which exists to fulfill the wishes of children with life-threatening illnesses; to experience a memorable, joyful, cost-free visit to Central Florida attractions and to enjoy the magic of the Give Kids The World Village
210 S Bass Rd
Kissimmee, FL 34746
800-998-KIDS
www.gktw.org
Healing the Children
Healing the Children envisions a world where every child has access to medical care. The challenges have never been greater: the ever-changing healthcare system in the United States, the shortage of available funds to nonprofit organizations, and the ever-increasing needs of children here and around the world.
PO Box 9065
Spokane, WA 99209-9065
(509) 327-4281
www.healingchildren.org
Hemi Kids Organization
Support for kids who have hemiplegia due to pediatric stroke or other causes
Children's Hemiplegia and Stroke Association
Suite 305, PMB 149
4101 W. Green Oaks
Arlington, TX. 76016
E-mail: info@chasa.org
www.hemikids.org
Juvenile Diabetes Foundation International
120 Wall St, 19th Fl.
New York, NY. 10005
www.jdrf.org
Kids in Contacts
Information for parents of children who wear contacts
http://members.aol.com/aphakic
Little Hearts on the Mend
Non-profit fund created for the purpose of providing financial support to children in need of heart surgeries who would otherwise go untreated
26710 Fond Du Lac Road
Rancho Palos Verdes, CA. 90275
E-mail: lilhearts@earthlink.net
www.littleheartsonthemend.org
Locks of Love
Non-profit organization providing wigs for children with long term medical hair loss
2925 10th Ave., North, Ste. 102
Lake Worth, FL. 33461
888-896-1588
www.locksoflove.org
Make A Wish Foundation of America
Foundation granting the wishes of children with life-threatening illnesses to enrich the human experience with hope, strength, and joy
3550 North Central Avenue, Suite 300
Phoenix, AZ. 85012-2127
(800) 722-WISH (9474)
www.wish.org
MUMS
National Parent-to-Parent organization for parents or care providers of a child with any disability, rare or not so rare disorder, chromosomal abnormality or health condition
150 Custer Court
Green Bay, WI. 54301-1243
(920) 336-5333 or 1-877-336-5333
www.netnet.net/mums/whatis.htm
National Attention Deficit Disorder Association
Support for consumers with A.D.D. and A.D.H.D.
www.add.org
National Down Syndrome Society
(800) 221-4602
www.ndss.org
Opitz G/BBB Family Network
A parent-run support network for all individuals and families of children who have Opitz-G/BBB syndrome
PO Box 515
Grand Lake, CO. 80447
www.opiznet.org
Parent to Parent of Georgia
Non-profit organization providing support and information to parents of children with disabilities; serving families who live in the state of Georgia . Embracing the philosophy that one of the most meaningful sources of support are other parents who have experienced parenting a child with a disability
3805 Presidential Parkway, Ste 207
Atlanta, GA. 30340
www.parenttoparentofga.org
Paul O'Neil Foundation
The mission of the Paul O'Neil Foundation is to offset out of pocket expenses
incurred by families and caregivers of children with long-term care and life
threatening illness. It serves families in Sagadahoc, Northern Cumberland,
Lincoln, and Eastern Androscoggin counties in Maine. Assistance is
provided with travel, food and comfort items expenses.
FMI: Julia O'Neil at (207) 443-1776.
Pediatric Cancer Research Foundation
Non-profit organization founded in 1982 to improve the care, quality of life and survival rate of children with malignant diseases
18 Technology Drive, Suite 147
Irvine, CA. 92618
(949) 727-7483
E-mail: admin@pcrf-kids.com
www.pcrf-kids.com
Pediatric Stroke Network
A family Support Organization offering support and information on stroke in children
E-mail: admin@pediatricstrokenetwork.com
www.pediatricstrokenetwork.com
Starlight Children's Foundation
An international non-profit organization dedicated to improving the quality of life for seriously ill children and their families. Working with more than 1000 hospitals, the Foundation provides an impressive menu of both in-hospital and outpatient programs and services. A leader in delivering distractive entertainment, Starlight's programs benefit over 100,000 children each month.
5900 Wilshire Blvd., #2530
Los Angeles, CA. 90036
800-274- STAR
www.starlight.org
Student Alliance on ADD and other Learning Disabilities
E-mail: webmaster@adult-add.org
www.adult-add.org/medical/index.html
Tomorrows Children's Fund
Privately funded organization that strives to ease the pain and suffering of children with serious blood disorders
www.atcfkid.com
Vascular Birthmarks Foundation
Charitable organization providing support and information resources to consumers affected by hemangiomas, port wine stains, and other vascular birthmarks and tumors
PO Box 106
Latham, NY. 12110
(877) VBF-LOOK
www.birthmark.org
Kristen Watt Foundation for Eating Disorder Awareness
Working to prevent eating disorders through programs to educate families, doctors and children on signs, symbols and treatments
6333 Pacific Ave.
PMB 541
Stockton, CA. 95207
(209) 472-1616
Email: kwattfoundation@aol.com
www.kristenwattfoundation.org
Wide Smiles
Non-profit organization providing resources, support and information for patients affected by cleft lip, palate birth defects
PO. Box 5153
Stockton, CA. 95205-0153
(209) 942-2812
www.widesmiles.org